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pages home about us dla q and a contact us saturday, 8 april 2017 it's been a while! hi everyone it's bethan here. quick recap: i was diagnosed with nephrotic syndrome when i was 4 years old - i turned 25 in december, 2016. i never went more than a few weeks without relapsing as soon as i dropped to 30mg of pred, and this went on for a few years. i am lucky to say that i have been in long-term remission for many years now and i'm living life to the full. so i encourage all those who are currently diagnosed with ns and all those fantastic people who are supporting loved ones with ns to stay strong, stay positive, and to never give up hope. it has been an extremely long time since we have posted so i have no idea how many of you will see this. here is a quick overview of what i have been doing the last couple of years. in july 2015, i graduated with a 1st class honours degree from brunel university london in social anthropology. i took a year out afterward and ended up in ecuador again where i volunteered as the operations coordinator for the arajuno road project (arp) organisation for about 7 months. in february 2016, my (now) ecuadorian fiance, elder, (who i met back in 2012) got his first passport and we applied for a visa for him to visit my family here in the u.k - his visa got denied. it was the most stressful time i've had in a while - i was physically ill from start to finish and suffered from my first migraine thanks to the whole thing. we applied again and over 200 pages of documents later, his visa application got accepted! so in april last year, we took the (long) bus journey from ecuador to colombia where we spent a relaxing 2 weeks together on the colombian coast before we then ventured home to england for what would be a crazy busy 6 months exploring the u.k! in july, whilst we spent a beautiful sunny long weekend at st. ives in cornwall, elder got down on one knee and proposed to me (in spanish). of course, i said yes, and despite not having any firm plans yet, we hope to get married next year - which country we will tie the knot it is yet to be determined! anyway, he has been back in ecuador since the end of last october and i have been frantically working part-time and studying a full-time master's degree in social anthropology. lectures now finished and for the next part of my degree, i am to do another bout of research - i'll be heading to guatemala next month for the summer and collaborating with an ngo called primeros pasos under their nutrition program. can't wait! all going well, in september i will be submitting a 15,000 word dissertation on my research. quite honestly, that seems impossible right now! but i will do it. of course, i can never simply travel to one destination and back again. my plan is to stop off in utah on the way and visit a great friend of mine who i met back in ecuador in 2012 and who i haven't seen in almost 3 years where we met up in tanzania when she came to volunteer with the small things . and how could i travel all the way to central america and not journey a bit further south to see elder and his family in ecuador? so fingers crossed, i'll make a visit for a couple of weeks to ecuador for elder and i's 5 year anniversary and partake in the community anniversary fiesta on 10th august. then it will be home. write. write. write. write. until i finish my dissertation and submit it on 15th september. my brain hurts already. i'll try and post soon with an update from guatemala! posted by bethan at 12:54 1 comment: email this blogthis! share to twitter share to facebook share to pinterest wednesday, 6 november 2013 new site as you can see, we have changed from the old website to a blog. we hope this will enable us to do more updates and allow for a more interactive site. keep checking back for improvements! posted by nephrotic syndrome support group at 15:34 no comments: email this blogthis! share to twitter share to facebook share to pinterest home subscribe to: posts (atom) welcome for those of you who want to see how well almost all chidren recover from ns, look at bethan's blog . she is our daughter, who is the inspiration for the support group. you will see, there is hope. when you see how she was when you look at the pictures on this site, aged four, and she never went more than a few weeks without relapsing as soon as she dropped to 30mg of pred, and this went on for a few years you will see that for almost all of the ns children, there is light at the end of the tunnel. she will be 22 in just a few weeks and is doing things we never thought would be possible. david bethan 2012 galapagos islands translate blog archive ▼ 2017 (1) ▼ april (1) it's been a while! ► 2013 (1) ► november (1) watermark theme. powered by blogger .

URL analysis for nephrotic.co.uk

http://nephroticsyndromesupportgroup.blogspot.com/2013/11/new-site.html
http://nephroticsyndromesupportgroup.blogspot.com/p/contact-us.html
http://nephroticsyndromesupportgroup.blogspot.com/2017/04/its-been-while.html
http://nephroticsyndromesupportgroup.blogspot.com/2017/04/its-been-while.html#comment-form
http://nephroticsyndromesupportgroup.blogspot.com/p/q-and-a.html
http://nephroticsyndromesupportgroup.blogspot.com/p/dla.html
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http://nephroticsyndromesupportgroup.blogspot.com/2013/11/new-site.html#comment-form
http://nephroticsyndromesupportgroup.blogspot.com/2017/
http://nephroticsyndromesupportgroup.blogspot.com/2017/04/
http://nephroticsyndromesupportgroup.blogspot.com/p/origins-about-14-years-ago-our-daughter.html
http://nephroticsyndromesupportgroup.blogspot.com/2013/11/
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Whois Information

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Domain name:
nephrotic.co.uk

Registrant:
David A Crisp

Registrant type:
UK Individual

Registrant's address:
The registrant is a non-trading individual who has opted to have their
address omitted from the WHOIS service.

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

Registrar:
Birch Hosting Limited t/a BirchHosting Limited [Tag = BIRCHHOSTING]
URL: https://www.birchhosting.com

Relevant dates:
Registered on: 06-May-2000
Expiry date: 06-May-2018
Last updated: 09-Oct-2017

Registration status:
Registered until expiry date.

Name servers:
ns1.superfast-hosting.com
ns2.superfast-hosting.com
ns3.superfast-hosting.com
ns4.superfast-hosting.com

WHOIS lookup made at 12:29:15 18-Nov-2017

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER co.uk.whois-servers.net

  ARGS nephrotic.co.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION David A Crisp

TYPE
UK Individual

ADDRESS
The registrant is a non-trading individual who has opted to have their
address omitted from the WHOIS service.
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

DOMAIN

  SPONSOR Birch Hosting Limited t/a BirchHosting Limited [Tag = BIRCHHOSTING]

  CREATED 2000-05-06

  CHANGED 2017-10-09

STATUS
Registered until expiry date.

NSERVER

  NS1.SUPERFAST-HOSTING.COM 146.148.26.0

  NS2.SUPERFAST-HOSTING.COM 146.148.28.88

  NS3.SUPERFAST-HOSTING.COM 130.211.50.255

  NS4.SUPERFAST-HOSTING.COM 104.196.137.209

  NAME nephrotic.co.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED yes

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